The Eternal Guest Room

Infertility kinda sucks.

The moment you’ve all been waiting for…and some other stuff

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Ah, today. Historically I have not been at my best. Three years ago today I became an aunt, and I was devastated. Nine months ago we did an IUI and the charting software told me that if it worked, my due date would be April 1. I decided that it was either Fate, or the Universe was playing a cruel joke on me.

April Fools Day can suck it.

Last month was our first month to “try on our own” after surgery. The charting software told me: “If you conceived this cycle, your due date would be: December 10, 2011.”

My birthday.

I would be lying to all of you if I told you I hadn’t gotten my hopes up. What a stupid, stupid thing, right? Conceiving naturally after 4 years? Of course, everyone knows someone whose aunt’s friend’s daughter-in-law’s boyfriend’s grandmother’s church buddy’s son’s best friend’s estranged wife etc. got pregnant miraculously after 18 years; but in reality, the odds are pretty slim.

Of course, today those hopes were crushed. Today of all days.

But of course, it really doesn’t matter. A long time ago I gave up the idea of Fate, or Signs, or Whatever.

For years I told myself: “Before Baby (fill in the blank) is born, I will have one on the way.” Or: “By the time Baby (fill in the blank) is (fill in the blank with years: 1, 2, 3), I will have my own, or at least be expecting one.”

What a silly game that was.

So in honor of today, and in the spirit of moving forward and saying “Whatever,” I give you these: The Long Awaited, Ever-So-Exciting, Much Asked About, Pictures of my Uterus! With my Polyp friend, of course.

Just a warning: the photos are kind of gross. So if you don’t want to see them, you should probably just move along and come back another day. But I’ve had so many requests and so much interest that I almost feel like I have to share them.

So here they are.

This is the “before” picture: where you can see the polyp:

2011Polyp1

The doctor drew in that black line to give it more definition for my benefit (I’m sure I looked confused and uncertain).

And for comparison, here is last year’s polyp:

2010Polyp1

Ew. Right? Ew.

The polyp is on my left side. This is what my right side looked like:

2011Polyp2

See that hole? That’s where my fallopian tube is. True story.

Now see this other view of the left side?

2011Polyp4

See how you can’t see any tube opening? Yeah. That is a problem. The doctor thinks the polyp was most likely blocking my tube. And for anyone who isn’t totally sure how all this works: eggs come out and sperms go up the tubes. They’re pretty crucial. So having one blocked is a serious problem.

One more view:

2011Polyp5

And here’s where it gets really awesome. Here’s the “Mid-surgery” photo: the instrument up my business taking out my abnormal growth. Hot, right?

2011Polyp6

Ew.

And this just might be the most disgusting picture of all of them. Here is the polyp, after it was removed. Yeah; that’s the polyp sitting on the operating table, or wherever. I’m not sure what that is in the background and I try not to think of it too much.

2011Polyp8

Ew ew ew.

To give you a frame of reference, the doctor said it was about the size of his pinkie. A uterus is about the size of a fist. “Pinkie-sized” honestly doesn’t sound all that big to me, but he kept saying, “It was really large; about the size of my pinkie,” so I guess that’s not too normal.

The really disturbing part is that this polyp wasn’t nearly as big as the first one.

And lastly, here’s a photo of the “after.” I can’t remember what the bubbles are, but this is what my uterus looked like immediately after the polyp was removed:

2011Polyp15

My doctor seemed most concerned about the fact that the polyp was blocking my left tube, along with the fact that it was so large.

I had the same surgery 13 months prior to this one. I think it grew back right away; within 6 months, at least. Which means we did all or all-but-one IUI with a polyp in there. It showed up on a saline sonogram as a “thickened area” of my lining. But it was there. I know it was. I’m pissed on one hand that it’s been missed so many times, but relieved on the other that it is now on the radar and the doctor will take me seriously when I express concern. We’ll be getting it checked out in May or June to make sure it hasn’t returned. We will not pursue any treatment without making absolutely sure that it is not there.

Next week we are getting D’s swimmers tested. The last time we knew how they were was December (for our Most Pointless IUI Yet). Since then, D has been going to weekly acupuncture sessions and making lifestyle and dietary changes. I am holding my breath and hoping that there has been some improvement since then. If not, it has been a tremendous waste of money.

It would be really nice to get some good news. Today, I am discouraged. I’m flat-out terrified that there will be no improvement. In fact, I’m scared that they have somehow gotten worse.

But I hope I’m wrong. I hope we get some good news. It would be nice to have some good news. Nice to have some hope.

welcome iclw

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Hello to everyone visiting from ICLW! I can’t even being to tell you how much it means to have this community; I honestly don’t know how I’d manage without it.

Just to give you some history:

My husband D and I have been TTC for 4 years next month (which I honestly cannot believe). Our first roadblock was a varicocele, which was repaired, and now we’re dealing with a low count and some other parameters on the low side. Our official diagnosis is “mild male factor.” Then I had a hysteroscopy to remove a huge polyp in my uterus in January 2010 – we thought that was the magic ticket. We then tried 4 IUIs and were about to start IVF, but discovered the polyp had grown back in the same spot as last time. I guess it just really loves me. So I had surgery again last week. We’re currently in a three-month holding period before we can jump into IVF, mandated by insurance even though the only thing they pay for is the occasional office visit and some of the bloodwork.

So we’re just waiting again, waiting for the time to pass so we can actually do something. In the meantime we have 3 chances to “try on our own,” which we will, with everything we’ve got, but we’re planning and ready for IVF at the end of it. It’s good to have a solid plan for once.

Thanks for stopping by!

surgery behind me, who knows what’s ahead?

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I cannot sleep. Which is unfortunate because sitting up is making me dizzy and I was getting really bored just laying in bed. I kept waking up every 20 minutes so I finally said “nevermind.”

Surgery went well, overall. The doctor got the polyp out and scraped and burned a little deeper this time to try to prevent it from coming back. The bad thing about that is that I now have a balloon in my uterus that will prevent the walls from fusing together (and thus making me completely barren and sterile, wouldn’t that suck?). A balloon that has to be in there for 5 days. A balloon that I have to deflate and remove on my own. Gross. I’m a very squeamish person and the thought of having a foreign object inside my body that I will have to take out by myself – ugh, it’s just a little much, especially on top of everything else.

I’ll try to post the photos of the polyp before and during removal for anyone who wants to see. Oddly, I had several requests for photos last time and never got around to it, so I’ll try to do that this time once we get them at the post-op appointment in a few weeks.

Surgery was at a different hospital than last time, and even though this hospital was newer and fancier on the outside (it was just a regular hospital once you got past the lobby) and had free pastries, we liked the other one better. The people just weren’t quite as friendly and didn’t seem to care about us as much. Not horrible, just not amazing. Last time I had the most AMAZING nurse ever, and I missed her. And their cracker and beverage selection post-surgery was not nearly as good as the other hospital. AND I had to listen to the nurses go on and on about lunch and Sonic drinks and a variety of chocolate while I was absolutely starving right before my surgery. I nearly leapt out of my hospital bed attached to my IV and jumped the counter to punch them in the face.

I didn’t feel the sheer terror in the operating room like last time, and I remember the anesthesia kicking in and kind of feeling like “yeah, this isn’t so bad.” Recovery is not so great so far, but I’m hoping I feel better tomorrow. I was in a lot of pain despite the vic.od.in – which is making me super dizzy – and finally threw some advil in there and found that helped more. Or maybe it was the combination. At the hospital I kept having to ask for more painkillers through my IV because they didn’t seem to be doing much and it hurt so badly. And it took forever for D to come back, they couldn’t get through to the people who could contact him or something, and I felt really lonely.

And I had a male nurse. Which – don’t get me wrong, I have no issues with male nurses – was just a little uncomfortable in a situation like this. I know they are professionals and it’s no biggie to them, but when a guy my age is taking care of me after a very invasive and awkward procedure like that, it just adds to my discomfort. And when he asked if we had kids and we said no, he actually said “That’s probably wise.”

“Um, that’s why I’m here,” I replied.

Sometimes I feel like banging my head against the wall.

pre-op day

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I’m about to leave to go to my support group, and I’m really glad it’s tonight because I don’t know if I’d make it through this evening otherwise.

I’m feeling very down and admittedly fairly whiny about having surgery tomorrow. I just did this, and it didn’t work. I can’t believe I have to go through it again.

Meanwhile everyone else keeps getting pregnant and popping out babies like it’s the simplest thing in the world. It isn’t fair. Everyone else just goes about their normal business, then happily pees on a stick a few weeks later and goes “oh my god I can’t believe it happened so fast!”

Why do I have to watch them all for so many heartbreaking years while going through surgery and procedures that may or may not work?

I’m a big believer in NEVER saying “Well, things can’t get any worse,” because I know that things can always get worse. I know there are worse things in the world. But that doesn’t make this easy to deal with.

Especially on days like today.

I went to both the RE’s office and hospital today to do my pre-op stuff. I had to go alone because D is already taking time off work tomorrow and Friday, so an extra afternoon off wasn’t very realistic. But it was depressing being there alone. While I was at the RE’s office, a family (?) came in – 2 men, 2 women, and 2 small children. I think the couple with the children was there with a couple going through IF, but I couldn’t say for sure. I was so annoyed to have to watch and listen to little kids running around the office when I was feeling so down. Then, when I was waiting at the hospital, I watched a brand new mom being brought out to her car, with her husband carrying their brand new baby. She didn’t look very happy. I felt so hopeless. And then I went to Target to pick up my pain killers for tomorrow, and saw 5 very pregnant ladies, in addition to all the moms with little kids in their carts.

I’ve been having a really crappy week, well, more like a really crappy month. I don’t know why January and February always have to be such terrible months for me. But I’m so tired of things going so badly.

We did finally find good pizza in dallas, and D took me out on valentine’s day and we had a great night despite it being a really hard day. So that’s one good thing. And I have my support group tonight. That’s another good thing.

I’m going to eat as much bread as I can get down, because I can’t eat or drink anything after midnight tonight, until I wake up from surgery around 3:30pm tomorrow. Those bread baskets will never know what hit them.

at least there’s muffins

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A lot of things don’t seem to work out in my favor in this whole mess, but sometimes I get lucky. We already had an appointment scheduled to meet with our doctor today, so we didn’t have to wait any longer to get some answers about the polyp junk. It was nice to sit down with him and have all of our questions answered; last time we were just so unprepared and blindsided that our pre-surgery appointment was a 60-second blur. Part of that was because we just weren’t all that comfortable asking our old doctor questions. New Doctor is so much more approachable and likable. So we asked our questions, and he answered them.

What causes polyps? No one really knows. Why do I keep getting them, even though they’re usually seen in 40-50 year old women? Dunno, but it’s actually fairly common in infertility patients. Why did it come back? No telling.

It’s in the same place as the previous polyp, so basically the old one grew back somehow. It’s not as big as the last one, but it is pretty close to one of my tubes, and therefore could be preventing eggs/sperms/embryos to get to where they need to go. Plus it takes up prime implantation real estate. They’ve also been shown to increase the chance of miscarriage, so you really want to get rid of them.

I need to wait for the hospital scheduler to call me, but it’s very likely that the surgery will be scheduled for February 17. They do all of their surgeries on Thursday afternoons. It’ll be just like last time, except at a different hospital. He told us that this hospital is better – newer, with better equipment, and muffins. I just spent a chunk of time reading our insurance book, and I don’t want to get ahead of myself or jinx myself, but it sounds like the surgery *might* be covered at 100%. Might. Which is a hell of a lot better than the $1700 we spent last time. Again, I might be wrong – really, who can decipher those insurance books?? – but I’m hoping I’m right. I’ve actually gotten pretty good at understanding insurance. Fortunately and unfortunately.

We will have to wait 3 months after surgery to pursue IVF. Not, as they told us last time, to give me time to heal, but because insurance mandates the 3-month waiting period. Even though insurance won’t cover a dime of the actual treatment costs and medications, they will pay for the occasional doctor’s office visit and bloodwork, so that 3 month waiting period is a must. Don’t get me started on insurance and health care.

I’m coping with the new turn of events better than I was yesterday, but still, it totally sucks. Even if we don’t have to pay for the surgery, surgery sucks. Last time I was miserable for days. Surgery itself was terrifying. Recovery was worse than I expected. I was in pain for awhile. It was just not fun. To say that I’m not looking forward to it is a huge understatement.

I’ll have another office hysterscopy to endure at the end of the three months. The doctor said they usually don’t do that, but given my history and concerns he thought it was a good idea. I didn’t say much about it yesterday, but it sucked. It hurt. It felt like it lasted forever, even though it was just a few minutes. My insides were up on a screen, live and on-camera. D looked at the screen, but I kept my eyes closed, trying to pretend I wasn’t there. I couldn’t stand to look – it just looked so gross, and I didn’t want to see it. I thought that my first hysterscopy would be my one and only, but now I know that I will have at least 2 of each kind. Four hysteroscopies total.

This better be worth it.