The Eternal Guest Room

Infertility kinda sucks.

This may be it

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Last night I did something I haven’t done in a really long time – I came across pictures of a baby in my blog feed and burst into tears.

I feel like this longing will never go away, along with the pain. It seems like no matter how good I’m doing, I stlil have those moments.

Lately I have felt like I’ve constantly been on the verge of tears. I think I’m finally starting to admit that there is a very strong chance we will never have our own kids. I’ve always said it and always known it, but in the back of my mind somewhere I truly believed I’d eventually get pregnant.

Now I look around our house and think “this may be it.” There may never be children there; or at least not until we move out of it. I sit at our quiet dinner table and think “this may be what the rest of our dinners are like.” There may never be kids to laugh and talk with at the dinner table. I look at every aspect of my life and think “this may be all you have to work with.” There may never be anyone else.

I’m so tired. And that may be it; it may just be my overly tired, totally stressed out body and mind telling me these things. And I know IVF is coming up, but the first IVF doesn’t always work, and I don’t see how we could afford a second. The odds are against us. I know this.

I feel bad that I haven’t written or posted anything about National Infertility Awareness Week. I meant to, but I haven’t had a moment this week to get it together. I did post something about it as a facebook status; I got a lot of “likes” but zero comments. One person reposted it. I honestly wasn’t expecting more, but I’d be lying if I didn’t say I do kind of wish it had done more. Maybe it got lost in peoples’ feeds with all the pictures of everyone else’s babies and kids.

I don’t know where I’m going with any of this – just trying to get some things off my chest, I guess. I think I’m too tired to think straight right now. I guess I just wish my life was different than it is now. And it’s hard that what I want is so far out of my control.

left behind in every way

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Lately I have really been struggling with feeling left behind.

First, there is the obvious – younger sisters having babies, people much younger and married a much shorter time than me having not only their first kid but their second, clients whose weddings I photographed long after mine making announcements, watching other peoples’ babies turn one, two, three, and then have siblings – etc.

And then there is the other – we were supposed to do IVF in February. Then we were supposed to do it in May or June. And now we’re pushing it back till late summer or early fall. And meanwhile, I’m watching all the other people going through Infertility getting to start their IVF cycles. Or, in some cases, finish.

I was supposed to be right alongside them, for better or for worse. I was supposed to be going through it with them. But instead they start their pills, continue with their shots, talk about the sizes of their follicles, and I’m just sitting there, with nothing. No progress, no hope, nothing to show for all the years behind me.

I’ve even been left behind by the Infertiles.

I know a bunch of people doing IVF in May/June and I just keep thinking that should be me. One girl from my support group started her IVF when we had originally planned on starting ours and now she’s pregnant with twins, and when I see her I think what if that was me?

I’m just sort of here. I’m jealous when they all go “oh wow, there’s a bunch of us doing IVF in May and June!” I want to be one of them. Because I think I’ve hit the end of my hope for ever having a baby the regular way.

I know that it’s best for us to wait a few more months, but I still feel left behind. The best thing I know to do is stay as busy as possible and not think about it, which I generally do a pretty good job with, but I still feel this nagging pull in my heart when I think or hear about it. I’m not wishing away my summer, because I have things I’m really looking forward to, but I’m so ready to get to the next step. Whether it works or doesn’t, I want to get on with it.

Desperate

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The desperation creeps in. Slowly at first, gradually building, finally all-encompassing. You want a baby so bad you’re willing to try anything to get one. Anything.

First it’s harmless – silly stuff, really. The things everyone knows, everyone tells you, if you let them. Legs up after sex. Just relax – take a vacation, don’t even try for a month, just stop thinking about it. Get really drunk. Check, check, check.

Then it gets a little weirder, you search a little harder, spend a little money. Pineapple cores. Mucinex. Green tea. Red raspberry leaf. Special fertility vitamins. Baby aspirin. Grapefruit juice. Evening primrose oil. Maca. Etc., etc., etc.

Pick your cocktail. Someone tried this and someone else tried that, so you try them both, along with the rest. All of this possibly on top of fertility treatments and shots and pills.

And nothing happens. So you move on to the next phase: acupuncture, herbs, fertility spells, maybe even a chiropractor. The bills start piling up. But you can’t stop: this next thing might be THE thing.

You hear it and think it and say it over and over again: “I’ll try anything, anything at all,” because you’re desperate enough and you know it.

But you keep going, giving into the desperation, because this might be your magic bean, your golden ticket, your key to the whole screwy mess.

And then it isn’t.

So you try something else.

The desperation is consuming. It clings to you like you cling to it. It’s cruel; it gives false hope. It keeps you coming back for more. “Sure,” you say, “I’ll try that. After all, it won’t hurt anything.”

Just your bank account, and your spirit when it fails. It surely looks irrational and ridiculous from the outside. People will think I’m silly and wonder why I bother – many will wonder why we don’t “just” do IVF.

I had a warm spinach salad and a glass of warm water for dinner. Not because I wanted them, but because it might make some sort of difference.

I am desperate. I’ll try anything. Anything at all. I can’t even begin to explain it.

*Disclaimer: I haven’t actually tried all the things listed above – just most of them.

results

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I spent all of Monday and Tuesday with my phone in my hand, waiting for the office to call with the results of D’s test. I finally called 40 minutes before they closed on Tuesday – and after leaving a message, I called back 10 minutes later, politely demanding to speak with a nurse right away. If there’s one thing I’ve learned from all these years, it’s that you have to be your own advocate; no one else will watch out for you. You have to do it yourself.

D posted a while back (about a year ago, actually) about the status of his…you know…reproductive material…here’s the chart, for quick viewing:

At our last IUI (in December) the numbers were dismal: volume was only .2ml (that’s POINT two, not 2) and total motile count was 1.4 (one point four) million; normal count is 16 (sixteen) million. Motility and morphology have stayed around the same numbers for a long time, so we haven’t worried too much about those numbers. It’s interesting to note that while those parameters have improved, the count consistently decreased over time over the course of the past 2 years.

Since that last awful sample, when we were told that we’d have to do IVF with ICSI because the count was so low, D has been going to acupuncture, taking herbs, getting back on special fertility supplements (FertilAid), and eating less crappy foods and more cooked veggies, beans, etc. I worried that it was all for nothing and I spent the two days waiting for results in an anxious state, worrying that the count would go from one million to zero, or something like that.

But I finally got the results; I had to go in the next day to pick them up because the nurse wouldn’t give me the details and I was desperate to see all the numbers on paper.

Motility & morphology are about the same (41% and 7%). Those seem to be ok – on the low end of normal (40% and 4%), but still above the minimum. Volume went from .2ml to 2ml. And the total motile sperm count went from 1.4 million to 18.9 million. Normal is above 16 million.

Something worked. We’ll never know for sure if it was the diet changes, acupuncture, herbs, supplements, or just random, but I feel like it was really a mixture of everything we tried. Our acupuncturist doesn’t think we need IVF. D doesn’t think we need IVF. I am willing to wait a little longer before we jump into IVF as well; I can think of a lot better things to do with $13,000.

We’re going to push IVF back a little longer; at this point, what’s another 3 months? We wouldn’t be able to start until June anyway, but because of several factors we’re going to wait to start in August or September. We booked a trip to Mexico for our 9-year anniversary. My three best friends are coming to visit in July. We might have some other things going on as well. And we have a little shred of hope that we won’t need it after all. And if we do, we will absolutely, definitely be ready.

We are relieved that we are seeing some improvement; even if we do get to IVF, that will help us out tremendously. Yay for good news!

The moment you’ve all been waiting for…and some other stuff

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Ah, today. Historically I have not been at my best. Three years ago today I became an aunt, and I was devastated. Nine months ago we did an IUI and the charting software told me that if it worked, my due date would be April 1. I decided that it was either Fate, or the Universe was playing a cruel joke on me.

April Fools Day can suck it.

Last month was our first month to “try on our own” after surgery. The charting software told me: “If you conceived this cycle, your due date would be: December 10, 2011.”

My birthday.

I would be lying to all of you if I told you I hadn’t gotten my hopes up. What a stupid, stupid thing, right? Conceiving naturally after 4 years? Of course, everyone knows someone whose aunt’s friend’s daughter-in-law’s boyfriend’s grandmother’s church buddy’s son’s best friend’s estranged wife etc. got pregnant miraculously after 18 years; but in reality, the odds are pretty slim.

Of course, today those hopes were crushed. Today of all days.

But of course, it really doesn’t matter. A long time ago I gave up the idea of Fate, or Signs, or Whatever.

For years I told myself: “Before Baby (fill in the blank) is born, I will have one on the way.” Or: “By the time Baby (fill in the blank) is (fill in the blank with years: 1, 2, 3), I will have my own, or at least be expecting one.”

What a silly game that was.

So in honor of today, and in the spirit of moving forward and saying “Whatever,” I give you these: The Long Awaited, Ever-So-Exciting, Much Asked About, Pictures of my Uterus! With my Polyp friend, of course.

Just a warning: the photos are kind of gross. So if you don’t want to see them, you should probably just move along and come back another day. But I’ve had so many requests and so much interest that I almost feel like I have to share them.

So here they are.

This is the “before” picture: where you can see the polyp:

2011Polyp1

The doctor drew in that black line to give it more definition for my benefit (I’m sure I looked confused and uncertain).

And for comparison, here is last year’s polyp:

2010Polyp1

Ew. Right? Ew.

The polyp is on my left side. This is what my right side looked like:

2011Polyp2

See that hole? That’s where my fallopian tube is. True story.

Now see this other view of the left side?

2011Polyp4

See how you can’t see any tube opening? Yeah. That is a problem. The doctor thinks the polyp was most likely blocking my tube. And for anyone who isn’t totally sure how all this works: eggs come out and sperms go up the tubes. They’re pretty crucial. So having one blocked is a serious problem.

One more view:

2011Polyp5

And here’s where it gets really awesome. Here’s the “Mid-surgery” photo: the instrument up my business taking out my abnormal growth. Hot, right?

2011Polyp6

Ew.

And this just might be the most disgusting picture of all of them. Here is the polyp, after it was removed. Yeah; that’s the polyp sitting on the operating table, or wherever. I’m not sure what that is in the background and I try not to think of it too much.

2011Polyp8

Ew ew ew.

To give you a frame of reference, the doctor said it was about the size of his pinkie. A uterus is about the size of a fist. “Pinkie-sized” honestly doesn’t sound all that big to me, but he kept saying, “It was really large; about the size of my pinkie,” so I guess that’s not too normal.

The really disturbing part is that this polyp wasn’t nearly as big as the first one.

And lastly, here’s a photo of the “after.” I can’t remember what the bubbles are, but this is what my uterus looked like immediately after the polyp was removed:

2011Polyp15

My doctor seemed most concerned about the fact that the polyp was blocking my left tube, along with the fact that it was so large.

I had the same surgery 13 months prior to this one. I think it grew back right away; within 6 months, at least. Which means we did all or all-but-one IUI with a polyp in there. It showed up on a saline sonogram as a “thickened area” of my lining. But it was there. I know it was. I’m pissed on one hand that it’s been missed so many times, but relieved on the other that it is now on the radar and the doctor will take me seriously when I express concern. We’ll be getting it checked out in May or June to make sure it hasn’t returned. We will not pursue any treatment without making absolutely sure that it is not there.

Next week we are getting D’s swimmers tested. The last time we knew how they were was December (for our Most Pointless IUI Yet). Since then, D has been going to weekly acupuncture sessions and making lifestyle and dietary changes. I am holding my breath and hoping that there has been some improvement since then. If not, it has been a tremendous waste of money.

It would be really nice to get some good news. Today, I am discouraged. I’m flat-out terrified that there will be no improvement. In fact, I’m scared that they have somehow gotten worse.

But I hope I’m wrong. I hope we get some good news. It would be nice to have some good news. Nice to have some hope.