The Eternal Guest Room

Infertility kinda sucks.

strength

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I was going to post about something different, but I started thinking yesterday about something I don’t usually think about.

We’ve been fairly public about our infertility struggles for a few years, and a little over a year ago went very public about it – D posted a link to this blog on his facebook wall for all to see (I didn’t post the link on mine because I have clients on my list and it was before the days of selective sharing). We’ve been very, very fortunate in that people have either been understanding and supportive or haven’t said anything; we haven’t gotten the hurtful comments that some people get.

I was going to post about loss but yesterday I started thinking about strength.

Over the course of the past year or so, several people have made comments about me being strong. I generally don’t think of myself this way; the people who say I’m strong don’t see me at my worst, crying my eyes out or thinking I can’t get out of bed some days.

But when I really stop and think about it, they’re right. I have strength that I didn’t know could even exist in me. I’ve been through so much, and I’m still here. That’s got to count for something. Some people say that infertility makes them stronger, but I don’t feel that way. I feel like infertility has made me realize that I’m stronger than I think.

I get out of bed when I don’t think I can face another day. I have injections in my stomach while I’m in my house. I make phone calls to set up more doctor’s appointments immediately after finding out more devastating news. I somehow find the strength to keep enduring more treatments, even though I know they will probably fail. I visited my newborn niece at a time when my heart was completely broken. I’ve sent people baby gifts even though the thought of it made me feel like crawling into a hole. I have gone to family events that felt like the most unbearable things I could imagine. I manage to put a smile on my face even on the days when it feels like everything is crashing down around me.

I see unbelievable depths of strength in the ALI (Adoption/Loss/Infertility) community; these women are absolutely amazing. They endure pain that most people can’t even imagine, and they survive. Their strength constantly floors me. The blogs I read and the stories I hear are often heartbreaking – loss after loss, year after year, crushing disappointment after disappointment – and I wonder how people keep going. But they do, because they possess this unbelievable strength. Even though it doesn’t feel like it sometimes (or most times), it’s there.

Those of us enduring infertility often have a hard time feeling especially thankful during the holidays. Today is a day where people all around the country are sitting around tables with their families thinking about how thankful they are to have them, and some of us want nothing more than a family of 3 to be thankful for. And of course I’m thankful for my  husband, and my cats, and my house, and our families and friends and all of that.

But today I have another thing to be thankful for: these people who are walking down a similar road, facing things close to what I’m facing, and who are able to reach out past their own pain to offer support to others. Someone once told me that pregnancy and babies are not merit-based, and it’s so true – these women deserve babies more than anyone. When they do get their babies I rejoice for them.

I am thankful for their support, and I am thankful for their strength, and I am thankful for mine.

November ICLW

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Hello and welcome to everyone visiting from ICLW! This is my third time to sign up and every time I get better at leaving all my comments. I have high hopes for this one.

It’s hard at this point to sit and write about our “history” because it almost doesn’t seem to matter any more, but just to give you some background: Trying for over 3 1/2 years. Varicocele repair to fix low motility and 0% morphology (it’s gotten much better). Hysteroscopy to remove huge polyp. 3 canceled IUIs. 3 completed IUIs, all BFNs. (And can I just say here that I HATE that wordpress/whoever doesn’t recognize varicocele, hysteroscopy, or IUI as real words.) In all these years, the only hint of a second pink line I’ve ever seen was the months I tested out the trigger. Our official diagnosis now is mild male factor.

After 3 1/2 years it gets harder in some ways and easier in others. I don’t have that sense of devastation every month, because I don’t have that sense of hope. I can go on Evil Facebook these days without having an emotional breakdown (though that might be because everyone who is pregnant or has babies is hidden). I can go on with my daily life and, well, live. In the course of a normal day, I mostly do OK. I have breakdowns and hours of uncontrollable sobbing, but it’s not on a super regular basis.

I made a huge mistake last night though. I was invited to a gathering of people I didn’t know, and I went. One of the hostesses is a friend who I see on a limited basis and who I had somewhat bonded with over infertility issues (though hers were MUCH different than mine, and she has kids). I got there only to find out that every single other person there was a mom. One had just given birth weeks earlier.

And that was All. They. Talked. About.

Breastfeeding and parenting and craziness and lack of sleep and how your body sucks after pregnancy. And I wanted to hit them, or at least scream. The one with the newborn made some comment about something (can’t remember exactly what, since she made comments all night) and I almost, almost snapped at her and said something along the lines of “well at least you have kids – do you know how many people would kill to be in your shoes, to face the minor inconveniences to your current lifestyle, just to have what you have?” But I bit my tongue.

I felt empty and I felt broken and I felt barren, and I felt completely out of place. I had nothing to add to the conversation. I had no idea what their lives were like. I wanted to leave but I couldn’t find a way out for awhile. It made my heart hurt. I left in tears and came home sobbing. I regretted going 100%. I’m trying to regain my social life, but after nights like that I wasn’t sure if that was the best idea.

Mostly I’m ok. But some days, not so much. And some moments – or events – I can barely keep it together.

But I think that’s how these things go.

what it costs

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As I’m about to start the process of ordering yet ANOTHER round of fertility medications, I thought it might be enlightening to share some information with you about what these procedures cost. Not because I necessarily want to tell you how much money we’re spending on this, but more to help you understand what a financial risk these procedures are. Plus, I think it helps to understand one aspect of why it’s so devastating when they fail (in addition to the emotional aspects).

Every doctor’s office is different and there are a variety of ways to do an IUI, but here is what our full injectible cycle costs BEFORE insurance (which not everyone has):

Actual cost of IUI itself: $300

Sperm washing: $200

Sonograms (in our past cycles we’ve had 3 sonograms, at $300 each): $900

Blood work (including a mandatory pregnancy test, even if you know it’s negative): $100

Medications: $700

If you’re still with me, that’s a whopping $2200. Now fortunately our insurance does cover some of this – they cover a chunk of the sonograms and blood work, but no meds and nothing for the actual IUI.

So our cost is:

IUI: 300 – sperm washing: 200 – blood work: 15 – medications: 700 – sonograms: 90 – for a grand total of around $1300. Per attempt. Regardless of the outcome.

When I look back at the amount of money we’ve spent so far, I feel sick. I can think of a million other things I’d rather be spending that money on. I know that people like to say you can’t put a monetary value on things like having children, and it’ll all be worth it in the end, etc., etc., and I know that’s true, but at the same time it’s a tough thing to think about. The people who say that also aren’t facing the possibility of spending every last dime that they have on procedures that may not even work, ever. If it works, it’ll be worth it. But if it doesn’t, it’s just money down the drain.

So that’s what it costs.

another really boring update

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I suppose I should write an update, though there’s not much of one.

When I went in for my last sonogram I still only had one mature follicle, so we decided to not do an IUI. Ideally they want 3-4 mature follicles and we felt it wasn’t worth spending the money with only one and therefore such a low chance of success. Now I know that you can have success with one and that you can have the most perfect cycle ever and still not end up pregnant, but since it is going to be our last IUI we decided to wait for better chances. And even if we did want to do the IUI with one follicle, it wasn’t likely to work out since we couldn’t do it on Saturday anyway.

So we’re at the same place we’ve been in for what feels like forever. I still have the cyst and if it doesn’t go away in the next 2 weeks we’ll have to postpone the IUI another month at least.

Sometimes I feel like banging my head against the wall and other times the whole thing just feels unreal and far away. Infertility is a disease and like any other disease there are good days and bad days.

frustrated

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I feel like screaming.

My cyst has gotten bigger, and is eating the medicine that’s supposed to be making the follicles grow. Usually this would be the point at which we would trigger for the IUI, but I only have one follicle and it’s only 15mm. It was 13mm on Monday, so it’s growing very slowly. (In the past I’ve had 2 follicles that were between 18-24mm by this point, to give you a frame of reference.) None of the rest are doing anything worthwhile.

We have an appointment to go in on Friday and we have two options if there is still only one follicle: throw a bunch of money at an IUI that probably isn’t worth doing, or cancel. Again. The problem with going forward with the IUI is that it would most likely take place on Saturday; and we are shooting a wedding on Saturday. So that can’t happen.

I can’t believe this is going so poorly. I feel like we’re continuously going backward. At one point in time I felt that getting to IUIs was going to solve our problems. I figured it’d be easy sailing once we got to this point. But it’s just making it feel like we have even less of a chance than before.

I find myself going into my yearly panic as the holidays approach. I think about Christmas and I want to throw up. In one month I’ll be 32. I can feel time slipping away; I was 28 when we started and I feel like we’re getting farther away, not closer.

I’m frustrated, and I’m kind of pissed.

last iui

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I’m afraid if I write this I’ll jinx myself.

We’ve started the process for our last IUI. So far, so good, though I did still have a small cyst left over from several months ago. The nurse told me it would be cruel to cancel me after having to wait for so long. True.

We went back to the original protocol after overstimming at the last one (spell checker says that’s not a word…psh). Hopefully everything will go okay. After all the canceled cycles, it’s hard to really believe that this one will go all the way through.

So we’ll see.

robbed

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Halloween has always been a big deal to me, and a special day for us. We had our first date on Halloween and got engaged 2 Halloweens later. It’s an anniversary.

I had a hard time giving up the “kid things” about Halloween. I went trick-or-treating every year until I went to college. I always made sure to carve a pumpkin and make caramel apples. Those things reminded me of my childhood, and being a kid, and the magic that went along with the holidays. And I fully, completely, 100%  intended to do all of these things with my own children someday.

Along with all the other holidays, Halloween lost something for me as the years went on. Doing the “kid stuff” was just a reminder of what I didn’t have. Last year especially, I was a wreck during Halloween weekend.

But this year I tried to move on. I got dressed up and went to a party. I bought caramel (but ran out of time to put in on the apples, so close). We even passed out some candy to trick-or-treaters, which I haven’t been able to do in past years. It was emotional, but I did it. We watched The Shining. Then we watched It’s the Great Pumpkin, Charlie Brown. And there was a line that really made me think.

As we all know, the Great Pumpkin that Linus tells Sally will be there doesn’t show up, and Sally is upset. She says:

“I was robbed! I spent the whole night waiting for the Great Pumpkin when I could have been out for tricks or treats! Halloween is over and I missed it!…What a fool I was.”

And I thought: “Yes. Exactly. That’s exactly how I feel.” I feel like I’ve spent the last several years and holidays waiting. Waiting for this amazing thing that people insisted I would have and that I truly believed I would have. And while I was waiting, life went on without me, and I missed it. I could have been out having fun and enjoying life and instead I was just sitting around waiting and feeling so depressed that I didn’t enjoy a thing.

I feel like I was robbed.

And that leads to the question – well, was I robbed, or did I rob myself? But then I think, “does it really matter?” I mean, what’s the difference?

That’s one of the most horrible things about infertility; it really robs you of so much. It robs you not only of your own children but also of joy, peace, naivety, innocence, happiness for people you care about who are able to get pregnant, the ability to enjoy what you have and the life you’ve been given. It takes away so much.

I worry that I will always regret these last 3 years. I feel like I’ve missed out on everything and haven’t accomplished anything. And I feel like I haven’t cared. The whole thing makes me feel bad, and kind of guilty.

I do feel like I was robbed. It isn’t fair what some of us have to go through. I could blame myself, but one thing I’ve learned though this is that you can’t and shouldn’t judge people, because no one knows how they will react to any situation. It is what it is.

I go in tomorrow morning for my baseline sonogram for our last IUI. The finality is weird. If this one doesn’t work, we either give up or move forward. I wish I hadn’t lost what I’ve lost, but the truth is that I already have. My hope is that as life moves forward, I’m able to move forward with it, or at least be an active participant in it. These days, my hopes are in the simple things.